Summary from Goodreads:
An exploration of women navigating serious health issues at an age where they’re expected to be healthy, dating, having careers and children.
Miriam’s doctor didn’t believe she had breast cancer. She did.
Sophie navigates being the only black scientist in her lab while studying the very disease, HIV, that she hides from her coworkers.
For Victoria, coming out as a transgender woman was less difficult than coming out as bipolar.
Author Michele Lent Hirsch knew she couldn’t be the only woman who’s faced serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population with important stories to tell.
Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system–a system where young women, especially women of color and trans women, are invisible.
And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Not only do they feel pressured to seem perfect and youthful, they also find themselves amid labyrinthine obstacles in a culture that has one narrow idea of womanhood.
Lent Hirsch weaves her own harrowing experiences together with stories from other women, perspectives from sociologists on structural inequality, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.
This spring is bringing a small crop of books focussed on women’s health and/or marginalized groups’ health. I reviewed Doing Harm a few days ago and Ask Me About My Uterus is also out today (I didn’t get a galley, so I’ll be checking that out later). Today is Invisible‘s turn.
Michele Lent Hirsch used her own experience as a queer woman with chronic pain and illness as a jumping off point to both a) research societal and medical attitudes toward young women with chronic illness and b) interview women all across the spectrum of gender identity/expression and race to give us a taste of what women with chronic illness experience. Chronic illness affects whether or not a woman is able to maintain her personal and professional relationships after symptom onset or diagnosis. It affects whether she can even acquire new relationships. It affects whether she is believed when reporting symptoms.
Invisible is the most intersectional book I’ve ever read. Hirsch has clearly made an effort to create a truly inclusive cohort of female-presenting interview subjects: straight women, gay women, women of color, queer women of color, women who are single, women in relationships, women with children, women without children. A qualitative researcher could take her notes and write a scientific paper about the common themes found in those women’s words. Her information is that good. The only other thing I can say is that the subtitle speaks for itself and this should be required reading for everyone. I think Hirsch could have done more summation or wrote a conclusion to tie all the books’ chapters together. Or perhaps not – maybe we deserve to hit the end of the book and sit there with our thoughts because chronic illness and its effects on women’s lives really has no end or conclusion.
Invisible is out now!
Dear FTC: I read a digital galley of this book from the publisher via Edelweiss.