Invisible: How Young Women with Serious Health Issues Navigate Work, Relationships, and the Pressure to Seem Just Fine by Michele Lent Hirsch

Summary from Goodreads:
An exploration of women navigating serious health issues at an age where they’re expected to be healthy, dating, having careers and children.

Miriam’s doctor didn’t believe she had breast cancer. She did.

Sophie navigates being the only black scientist in her lab while studying the very disease, HIV, that she hides from her coworkers.

For Victoria, coming out as a transgender woman was less difficult than coming out as bipolar.

Author Michele Lent Hirsch knew she couldn’t be the only woman who’s faced serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population with important stories to tell.

Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system–a system where young women, especially women of color and trans women, are invisible.

And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Not only do they feel pressured to seem perfect and youthful, they also find themselves amid labyrinthine obstacles in a culture that has one narrow idea of womanhood.

Lent Hirsch weaves her own harrowing experiences together with stories from other women, perspectives from sociologists on structural inequality, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.

This spring is bringing a small crop of books focussed on women’s health and/or marginalized groups’ health. I reviewed Doing Harm a few days ago and Ask Me About My Uterus is also out today (I didn’t get a galley, so I’ll be checking that out later). Today is Invisible‘s turn.

Michele Lent Hirsch used her own experience as a queer woman with chronic pain and illness as a jumping off point to both a) research societal and medical attitudes toward young women with chronic illness and b) interview women all across the spectrum of gender identity/expression and race to give us a taste of what women with chronic illness experience. Chronic illness affects whether or not a woman is able to maintain her personal and professional relationships after symptom onset or diagnosis. It affects whether she can even acquire new relationships. It affects whether she is believed when reporting symptoms.

Invisible is the most intersectional book I’ve ever read. Hirsch has clearly made an effort to create a truly inclusive cohort of female-presenting interview subjects: straight women, gay women, women of color, queer women of color, women who are single, women in relationships, women with children, women without children. A qualitative researcher could take her notes and write a scientific paper about the common themes found in those women’s words. Her information is that good. The only other thing I can say is that the subtitle speaks for itself and this should be required reading for everyone. I think Hirsch could have done more summation or wrote a conclusion to tie all the books’ chapters together. Or perhaps not – maybe we deserve to hit the end of the book and sit there with our thoughts because chronic illness and its effects on women’s lives really has no end or conclusion.

Invisible is out now!

Dear FTC: I read a digital galley of this book from the publisher via Edelweiss.

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This Will Be My Undoing: Living at the Intersection of Black, Female, and Feminist in (White) America by Morgan Jerkins

Summary from Goodreads:
From one of the fiercest critics writing today, Morgan Jerkins’ highly-anticipated collection of linked essays interweaves her incisive commentary on pop culture, feminism, black history, misogyny, and racism with her own experiences to confront the very real challenges of being a black woman today—perfect for fans of Roxane Gay’s Bad Feminist, Rebecca Solnit’s Men Explain Things to Me, and Chimamanda Ngozie Adichie’s We Should All Be Feminists.

Morgan Jerkins is only in her twenties, but she has already established herself as an insightful, brutally honest writer who isn’t afraid of tackling tough, controversial subjects. In This Will Be My Undoing, she takes on perhaps one of the most provocative contemporary topics: What does it mean to “be”—to live as, to exist as—a black woman today? This is a book about black women, but it’s necessary reading for all Americans.

I was super excited to see that Morgan Jerkins had an essay collection coming out. I’ve really liked her writing that I’ve read in various publications.  I won’t be able to do my reading of her writing justice, but I’ll try.

This Will Be My Undoing is Required Reading for everyone. Jerkins may be writing as a black woman to other black women, but the rest of us are privileged to see her thought processes. She writes about the politics of black hair, black women’s sexuality and how that sexuality is policed, the portrayal of Michelle Obama by the media, dating, and color-blind racism. It was really interesting to be read Jerkins’s thoughts on love, dating, and sex as I was also reading The Wedding Date, Haven, and A Princess in Theory (out 2/27, review to come), three pro-black women, consent-positive, romances written by black women. The juxtaposition of what black women want and deserve to have with Jerkins’s experiences as a black woman and a black girl and her reading of how black women’s and girls’ sexuality are policed was just mind-blowing. A few of the early chapters have maybe rough starts where it takes a bit for the form and the subject to gel, but by the time Jerkins hits “Who Will Write Us?” she is absolutely firing on all cylinders. I really look forward to everything else she’s going to write. So glad this got picked up by the BN Discover program.

Dear FTC: I read a paper galley of this book we received at the store.

They Can’t Kill Us Until They Kill Us by Hanif Willis-Abdurraqib

Summary from Goodreads:
In an age of confusion, fear, and loss, Hanif Abdurraqib’s is a voice that matters. Whether he’s attending a Bruce Springsteen concert the day after visiting Michael Brown’s grave, or discussing public displays of affection at a Carly Rae Jepsen show, he writes with a poignancy and magnetism that resonates profoundly.

In the wake of the nightclub attacks in Paris, he recalls how he sought refuge as a teenager in music, at shows, and wonders whether the next generation of young Muslims will not be afforded that opportunity now. While discussing the everyday threat to the lives of black Americans, Abdurraqib recounts the first time he was ordered to the ground by police officers: for attempting to enter his own car.

In essays that have been published by the New York Times, MTV, and Pitchfork, among others—along with original, previously unreleased essays—Abdurraqib uses music and culture as a lens through which to view our world, so that we might better understand ourselves, and in so doing proves himself a bellwether for our times.

They Can’t Kill Us Until They Kill Us is a volume of sharp, insightful criticism about the intersections of music and culture, specifically punk, rap, and being a black, Muslim man who has often been the only brown face at a show, but also grief, loss, and hope. Abdurraqib is also a poet and it shows in the way he constructs his sentences: “No one decides when the people we love are actually gone. May we all be buried on our own terms.”

Dear FTC: I read My Own Damn Copy of this book.